Partly paralysed Bedminster girl ‘desperate’ for help to dance again after brain surgery

partly paralysed bedminster girl desperate for help to dance again after brain surgery - Partly paralysed Bedminster girl 'desperate' for help to dance again after brain surgery

The family of a Bedminster girl is hoping to raise £3,500 to help her overcome partial paralysis.

Luckwell Primary School pupil Rosie Carter, 10, is not able to move her right arm or right foot after undergoing 16 hours of brain surgery in January to control her epilepsy.

Her parents Mary and Paul are trying to raise funds for electronic stimulation therapy which could help Rosie regain full movement, because it is not available to her on the NHS.

Mary, 49, said: “She is quite a jolly little girl who loves to sing and dance. If she had her arm back she would be the most confident girl in the world.”

‘Her head changed shape overnight’

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Rosie Carter (Image: Michael Lloyd Photography)

Rosie, of Luckwell Road, has battled health issues all her life, including a brain haemorrhage when she was nine weeks old.

Mary said: “Her head changed shape overnight. I went to the doctors thinking I had lost the plot.

“The ultrasound revealed she had a bleed on the brain. They put a stunt into the brain to drain it.”

Since the haemorrhage, Rosie has struggled with weakness of the right side of her body.

She had epilepsy from birth, which deteriorated as the years went on and eventually got “out of control”, Mary says.

As she grew older, Rosie’s seizures started happening on a daily basis. She would often have them at night and wake up very tired.

“She had to miss periods of school,” Mary said. “We went on holidays where she ended up in hospital.

“It was controlling all of our lives. We would always be looking for the nearest exit in a room.

“Last summer Rosie realised life was going on and she wasn’t getting invited to sleepover parties after missing lots of school. She wanted the seizures to end.”

Mary and Paul were told by doctors epilepsy could cause brain damage if it was not addressed.

The operation

yH5BAEAAAAALAAAAAABAAEAAAIBRAA7 - Partly paralysed Bedminster girl 'desperate' for help to dance again after brain surgery

Rosie Carter (Image: Michael Lloyd Photography)

They took her to the Bristol Royal Infirmary for an operation in January to control the condition by disconnecting the left side of her brain from the right.

Mary said: “We were told that there were risks things could go wrong, like with any brain surgery.

“We were told she would be likely to have a pencil-grip weakness. The doctors thought it would take about six months for her to get back to her normal movement.”

But Rosie was unable to move her right arm or right foot following the surgery and, five months on, this is still the case.

She had to stay in hospital for around three months and is struggling to walk, often having to use a wheelchair.

Mary said: “She is quite upset obviously. She can’t do what her peers are doing.

“We went to an arcade and all the games were two-handed so she got upset and walked out.

“I have to dress her at the moment. Rosie likes to be quite independent. It has been getting her down.

“She loves to dance and is so desperate to get back to it.”

‘Hard to understand’

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Rosie Carter (Image: Michael Lloyd Photography)

While in hospital, Rosie had electronic stimulation to “wake up” her muscles, Mary revealed.

The treatment allowed her to move her arm temporarily, but she has not been able to continue with it after leaving hospital because the NHS does not offer it to child outpatients.

Mary said: “It’s hard to understand why it is not available to children, given that we have seen it works for Rosie.”

 

Rosie is happy to have gone 17 weeks without a seizure, her mum added. She is easing herself back into school, doing two hours a day.

The 10-year-old will walk around Greville Smyth park on June 15 to raise funds for electronic stimulation which is provided in Salisbury.

Mary said: “This may seem simple, but for her it is a huge challenge. It is something she wants to do.”

A total of £580 has already been donated to the fundraiser. You can help the Carters reach the £3,500 target by clicking here.

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