Tributes have been paid to a mum-of-eight from Cirencester following her death at the age of 47.
Nicola Kilby had Wegener’s Granulomatosis, a rare blood vessel disease also known as GPA.
The family are now raising money for Vasculitis UK, to raise awareness of the condition.
“It was always something my mum wanted to do but her health occupied her, it wasn’t something she was able to fulfill,” said son Kieran Lane, 25.
“Until mum became ill I hadn’t heard of the disease. When I told people about it it was clear nobody knew what it was.
“That was the first time I ever saw it mentioned on any kind of platform.”
Kieran set up a GoFundMe page with an initial target of £500 – a small amount of which would go towards Nicola’s funeral with the rest going to support Vasculitis UK. However, £4,000 has so far been raised.
“I thought they’ll be a few people who’d chip in but we’re not going to hit it,” said Kieran.
“It’s gone everywhere. I’m dumbfounded. I can’t express how amazing and humbling it is.”
He hopes Nicola’s story will raise awareness of vasculitis diseases.
“With autoimmune diseases no symptoms are going to be the same, even the slightest thing is worth getting checked out,” said Kieran.
“She thought she had a sinus infection.
“The peak of it happened during Covid so it couldn’t have been timed any worse.
“It’s a horrendous disease.”
Nicola lived in the Cirencester area her whole life, moving from the village of Woodmancote to the Beeches 10 years ago.
“My mum was like no other,” said Kieran.
“She was full of life and had an undying love for her children.
“She was adored by all who came into contact with her. She was a best friend to me and my other siblings.
“It’s a very big void to fill. We are lost without her.
“We are not going to stop raising awareness and money for this to get more known.”
Kieran wanted to thank everyone who has donated, as well as his siblings who took care of Nicola before she died.
You can donate at bit.ly/3phDIMe
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